Summary of American Epilepsy Society Statements and Letters
Make no mistake... Charlotte's Web IS NOT A PRESCRIPTION MEDICATION AND IS NOT ENDORSED BY THE AES.
President of American Epilepsy Society statement on Charlotte's Web oil- "A study by a team from Children's Hospital Colorado that was presented during the AES Annual meeting in December 2014 and has recently been accepted for publication in the journal Epilepsy & Behavior, found that artisanal "high CBD" oils resulted in no significant reduction in seizures in the majority of patients and in those for whom the parents reported improvements, these improvements were not associated with improvement in electroencephalograms (EEGs), the gold standard monitoring test for people with epilepsy.
The anecdotal results of a few families in Colorado, shared in the media, should not be the basis for law making. The rush by states to pass CBD legislation has created an unusual situation where people with epilepsy and their families are demanding access to a highly variable homegrown substance that may or may not be beneficial and the medical and scientific community lacks the necessary efficacy and safety data to make good treatment decisions regarding cannabis for people with epilepsy, especially in children.."
2016 3 11 Letter to PA Legislator
American Epilepsy Society Letter to Gov. Otter, Idaho
Dr. Wechsler, Medical Director Idaho Comprehensive Epilepsy Center
Details of 3 studies Artisanal CBD--Dr. Chapman and colleagues at Colorado Children’s Hospital and the University of Colorado reviewed cases of 58 children with severe epilepsy who came into their care while using artisanal CBD. Parents reported seizure reduction of 50% or more in only one-third of patients, but except for two children there was no improvement in their EEGs. Adverse effects occurred in 47% of patients: 21% experienced increased or new seizures; 10% suffered developmental regression with one patient needing intubation; one patient died.